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An Attitude of Gratitude

Wednesday, November 23rd, 2011

The fixation on fixing things

For many families who are impacted by disability it is easy to spend time and energy (and of course, money) focusing on all that needs to be “fixed”. The fixation on fixing things can leave us exhausted and drained of emotions, energy and resources. At this time of year we have an opportunity to spend a little time thinking about what we are thankful for.

"Thank You" in English, and a number of other languages.Looking for things to be thankful for

Looking for things to be thankful for is a great exercise for all of us. On a “good” day it’s pretty easy, but on a “bad” day it may take some creativity. Finding reasons to be grateful and to appreciate the ordinary things in our everyday lives can help us all to be in a better place.

Things I am grateful for:

  1. I am grateful for slip-on shoes and Velcro, because my son has never been able to tie his own shoes
  2. I am grateful for the internet that allows me to feel connected to my friends, family and community even when I can’t get out of the house. Continue reading An Attitude of Gratitude

Happy Halloween

Monday, October 31st, 2011

Carved lit smiling pumpkinAs a parent of a young adult with autism, I don’t scare easily. With Halloween just around the corner I find myself thinking again about this annual holiday ritual.

Early Years

In the early years, all I really hoped for was that my son would put on a cute costume and keep it on long enough for me to get a quick photo, and that he not consider the neighbor opening their door an invitation to come on in and have a look around. It was still a time when I cared a lot about what OTHER people thought of me and my son. Continue reading Happy Halloween

Back to School

Monday, August 22nd, 2011

School crosswalk sign

As kids head back to school this week, and over the waning weeks of summer, parents of all children are filled with a range of emotions. If you’re a parent of a child in special education, these emotions can be heightened in a number of ways.

You have likely just had a few weeks with no summer school or supplemental programs that help to keep your child on a predictable routine and productively engaged. Part of you looks to the start of the school year enthusiastic about the return to “normal” routines. Yay!

New School Year

The more powerful emotion is often the anxiety of what the new school year will bring. You worked hard at the end of the school year to prepare for, and define, your child’s program in his or her IEP. Wanting to know who their teacher or classroom aide will be, even though you are told by the team that they can’t name a specific teacher or aide in the document. Will they remember that they committed to a low student-teacher ratio to ensure your child will benefit from the instruction? How soon after the start of school will the other programs like speech therapy, OT, and community programs start? Even with all the careful planning and preparation, things can fall apart in those early weeks of the new school year. We worry, we make phone calls, and we visit classrooms and principals along with all the other school prep like shopping for clothes and supplies. We try to control the uncontrollable. Continue reading Back to School

Left-handed scissors?

Monday, February 21st, 2011

Two pairs of scissors. One for left-hand use and the other for right-hand useAmy Chua’s Wall Street Journal-published book excerpt-cum PR move “Why Chinese Mothers Are Superior” certainly got parents talking a couple of weeks ago: How strict is too strict? How hard should we really push our kids? Somewhere in all the noise, there were some special-needs parents asking, “What about my kid? She isn’t ever going to play at Carnegie Hall, no matter how hard she practices.” Ms. Chua had her answer ready: her sister with Down’s was in the Special Olympics, so even in the world of disabilities, it’s possible to excel if you only work hard enough.

I don’t think she’s totally wrong. There, I said it. No, I don’t need my special needs kid to win a sports medal or a national karaoke TV contest or anything of the kind. But it is my job—any parent’s job, regardless of their kids’ abilities—to help my child grow up to be as independent as possible.  That means he needs to learn to navigate the world with as few accommodations as possible.

I’m left-handed. But I was taught from the outset to use right-handed scissors because left-handed scissors aren’t usually just lying around in your average classroom or office. You have to plan to have them wherever you might need them. That’s very cumbersome and limiting, and I’ve always been glad of my mother’s foresight and pragmatism about the matter. Continue reading Left-handed scissors?