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Why I Don’t Love The Things That Make My World Accessible

Tuesday, February 14th, 2012

Heart with a lightning bolt in the middleWhen Dave Hingsburger from Rolling Around in My Head (http://davehingsburger.blogspot.com/) mentioned that he was hosting the February Disability blog carnival and that the theme was ‘love we have for the things that make our world accessible’ I was excited. I was full of ideas. I was going to write about how much I loved my chair (again) or I was going to write about how I loved when places are completely accessible without having me to ask for help.

And I kept thinking and thinking. I began writing multiple times only to hit the backspace and start over. One of the things I’ve always enjoyed about Dave’s blog is about how uniquely positive it is. The chance that I’ll click on the blog link in the morning and be likely to read a heartwarming story about children who just ‘get’ things is often far greater than the chance of reading a post that makes me want to rage against the world. His blog tends to make me feel as if I’m astoundingly negative about the world, and I’m afraid that this post won’t change that one bit.

My wheelchair makes me free

If I wanted to be positive I would write about how free my wheelchair makes me. But one, I’ve already written that post, and two, all I can think of at the moment is how absurdly difficult that process was. I’ve had so many people tell me I didn’t need a wheelchair that I’m often afraid to move my legs while in it. I cringe when I go shoe shopping because I’m afraid someone’s going to run up to me and yell ‘you don’t need that!’. I hate explaining that while I can walk assisted, I can’t actually go up certain steps.

My wheelchair makes me free. It doesn’t make the world accessible to me.

Things that make the world accessible to me

The things that make the world accessible to me are the most common disability modifications. I need ramps, elevators, and widened doorways or aisles. Should I love them? Should I love seeing a ramp next to the handicap parking? Should I love seeing an elevator when I need to go to the second or third floor? Should I love being able to get through aisles without a problem?

Part of me immediately says yes. That’s the part that is just so relieved that I can go somewhere, that I can go to the store or the school or the public office building. And it is wrong. The rest of me is screaming NO.

How many people love the fact that there is a flight of stairs to get to their second floor apartment? Do they greet the stairs with a happy and relieved smile? Do they have to make plans on what to do if there were no stairs to their apartment?

No.

So why should I love these things? Should I love them because they’re surprisingly rare? Should I love them because my favorite shop finally became accessible to me again? Should I love it when employees treat me like a human being instead of a prop or an exciting story? Should I love it when parking lots shovel the snow and move the snow somewhere that actually isn’t the handicap parking spaces?

No.

Should I be grateful?

No.

Will I love these things anyway? Sometimes. Will I be grateful anyway? Sometimes. Will this inconsistency drive me up the wall? You bet.

Right now, I refuse to love ramps, curb cuts, and elevators. They might make the world accessible to me but I refuse to love something that should be taken for granted.

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Originally published at: Gimp ‘Tude

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She Gets It

Wednesday, February 1st, 2012

Cat sitting next to wheelchairShe gets it. She gets it very well. When I come home, she still runs to the door. When I wake up in the morning she still tries to jump into my arms. She puts herself into the path of my cane or crutches, knowing full well that there’s a chance she’ll get attention if she keeps me from moving. She has no problem jumping into my lap while I’m trying to make breakfast.

What If People Were More Like Cats?

Sometimes, I wish people were a lot more like cats. No, I don’t want random strangers launching themselves into my lap. That would be weird. But cats seem to have this very calm acceptance about things. They don’t care if you’re up and walking one day and sitting the next.

Cats First Reaction to Crutches

When I first came home with crutches the cats were confused and curious. They sniffed. They watched. They ran away a couple times. But over time they adjusted just fine. Now, the only time my cat gives me a second glance is when she’s trying to figure out how to get into my arms or lap. Continue reading She Gets It

Disability in Once Upon a Time

Tuesday, January 10th, 2012

(The following contains major spoilers for Once Upon a Time episode 8, Desperate Souls.)

ABC’s “Once Upon a Time”

Robert Carlyle as Rumplestiltskin/Mr. Gold in ABC's "Once Upon a Time"Sure, it’s a bit cheesy, campy, and some of the characters’ acting makes you wince at times (I’m looking at you Regina), but since the first episode, I’ve fallen in love with ABC’s “Once Upon a Time”. I have a weakness for fairytales and a thirst for ones that are retold and I find that this show retells it quite imaginatively. The show switches between a modern day world and a complete and utter fantasy land. Characters like Little Red Riding Hood, Jiminy Cricket, Cinderella, and Snow White populate both worlds.

As does a certain man (Robert Carlyle) called Rumplestiltskin in the fantasy world and Mr. Gold in the modern day world. Since the first episode, Rumplestiltskin is a wiry man with an eerie smile who looks completely able-bodied. But in the modern world, Mr. Gold is a wiry man with an eerie smile who walks with a cane. The cane is obviously not for show and the way the actor moves with the cane it is very convincing that Mr. Gold is not an able-bodied man.

Gold’s Cane

I’ve been withholding my judgment and thoughts about Gold’s cane. I have been worried that the cane was the sign of his evilness in the modern day world (and I’ve never been convinced that he’s completely evil either). I’m glad that I’ve kept from a knee jerk reaction, and I have appreciated that in the modern day world, Mr. Gold has a cane and the people around him treat it as a perfectly natural thing. Gold is shown going places and at one point he’s even deep into the woods. There’s no mess and fuss about how Gold doesn’t let his disability stop him. He’s not portrayed as a ‘supercrip’. He’s not portrayed as a bitter man, upset that he’s disabled.

He’s a man who uses a cane. The cane is secondary.

But of course, this is a fairy-tale retelling. If there’s anything slightly out of the ordinary, there’s going to be a reason for it. And by “Desperate Souls” we finally learn why Mr. Gold is shown with a cane but Rumplestiltskin is not.

Sort of, anyway.

Episode 8: Desperate Souls

The episode begins and we see Rumplestiltskin who looks a lot less creepy than usual. In fact, he looks downright normal. (Up to this point, there’s been something really strange about Rumplestiltskin’s skin texture.) And we find him leaning heavily on a walking stick. I’m rather proud that I didn’t immediately assume that Rumplestiltskin was soon going to find a miracle cure. The episode never allowed that thought to grow.

We learn the Rumplestiltskin ran from war and that he’s a single father desperate to keep his almost fourteen-year-old son from being taken to fight. He takes his son and runs. And here’s another thing I appreciated about this episode, even though Rumplestiltskin couldn’t physically run, there’s no awkward mish-mash of words to describe what they’re doing without using the word ‘run’. Nope. They are running.

When they’re caught by one of the king’s men, the first insult is based on Rumplestiltskin’s name. Only the second insult (“hobblefoot”) is based on his disability.

Rumplestiltskin is not angry because he’s disabled, he’s angry because he has no power to save his son. He has no money, no status, and no power.

Where most stories would focus on the limiting factor of disability, Once Upon a Time does not. Rumplestiltskin searches for a dagger that would give him power, power to protect his son. There’s no mention of curing his disability.

And when he steals the dagger and does get the power, he is healed, but once again, it’s considered a secondary thing. And there’s no fuss raised about how he is healed. In fact, no one explicitly mentions it. There’s no hurrahs, there’s no awe and no shock.

Disability Just Is

It’s rather brilliant, really. In Once Upon a Time, disability just is. It’s shown as a perfectly normal part of life. The character who is disabled is a recurring character who plays a rather large role. He’s not a one-off character. He’s not teaching any lesson. You’re not supposed to pity him for having a disability. And even if he is shaping up to be more of an evil character (I’m still thinking of him as a morally gray character) he’s still very human. He’s not a cardboard cut-out of offensive stereotypes.

While in the fantasy world, Rumplestiltskin is healed (and becoming darker), in the modern world, Mr. Gold is still using his cane as if it is the most natural thing in the world.

Which it is.

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Originally published at: Gimp ‘Tude

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Who Needs It?

Monday, January 2nd, 2012

One Dollar Bill laying on the ground over leaves

“There’s a dollar over there.  Is it yours?”

So, I’m sitting alone in the airport — a small town airport. I’ve gone through security a little ahead of my friends, and I am waiting by the window. A woman approaches me. “There’s a dollar over there. Is it yours?” I look. Sure enough, there’s a dollar on a seat two rows over. I shake my head. Then, it begins.

The woman asks if I would like the dollar. I say no. “No,” she tells me. “Take the dollar. You can have it.” I respond: “It’s yours; you saw it.” “I’m giving it to you….” At this point, I get a little, well, pissy. I make it perfectly clear that I don’t want to take the dollar. It is a strange situation after all. I didn’t see the dollar. It’s not my dollar. But the scene is sadly familiar. It’s like this one from 2008:

Starbucks. Me drinking bad coffee and reading my email. A bright and beautiful teen picks up her coffee. School ended early today; she’s with her friends, enjoying the freedom. She fumbles her purse, the change, and the drink. 10c falls on the floor at my feet. I turn to see what the noise is. And just catch her… “Please, keep it. I don’t need it.” I look at her. She has her whole future in front of her; she thinks she’s doing me a favour. I realize how I must seem. There’s absolutely nothing to say. Where would I even start? I leave the money on the floor, pack up my computer, and leave.

Just as that frisson of recognition happens, the woman turns to me with that sainted pious look on her face. “I’ll take it,” she says, “and I promise to give it to the next person who needs it.” Continue reading Who Needs It?